Mother Hopes to Raise Duchenne Awareness Globally on Mt. Kinabalu

Mother Hopes to Raise Duchenne Awareness Globally on Mt. Kinabalu

What would happen, if tomorrow you realize you can’t lift a spoon to feed yourself or walk three steps to go to the bathroom anymore? That’s something that boys and men with Duchenne, a progressive muscle-wasting disease typically face every day. They can’t flex their muscles at the gym for all to admire and certainly can’t perform normal functions that depend on the use of their arms and legs. Know what’s scary? It can happen to any boy past the age of 6 years old. It happened to Albert Wong in Kuala Lumpur.

What is Duchenne?

Duchenne is a catastrophic, progressive muscle wasting disease that affects one in 3,500 boys worldwide. It robs boys of their ability to walk, breathe, eat and speak, and eventually takes their lives, often before they reach age 20. It leaves their minds unaffected. Read more…

Expedition Mt. Kinabalu

On September 9th, 2011, a team of international climbers will conquer Mt. Kinabalu under the Coalition Duchenne banner. In an effort to raise awareness and a possible cure for Duchenne muscular dystrophy (DMD), they are inviting you to climb with them or donate to their cause.

Check out the flyer below:-

So why Mt. Kinabalu?

Say Hello to Dusty!

Dusty Brandom from Newport Beach, California is 18 years old and he has Duchenne. His mom Cath Jayasuriya, whom he co-founded Coalition Duchenne with is a Sabahan. His grandparents live in Sabah and he has made a special video message for you…

Dusty recently fulfilled his wish to meet President Barack Obama and even told him about Expedition Mt. Kinabalu!

You can read all about it here on Cath’s blog. She also shares many other adventures on her blog http://cathjayasuriya.blogspot.com, so be sure to check it out.

So if you’re interested in an adventure of a lifetime whilst helping create awareness for Duchenne, you may ask them here.

You could also support them via donations and read more about what they are doing at http://www.coalitionduchenne.org

Isn’t it time to do something worthy with your muscles?

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